Privacy Policy

The University of North Carolina at Chapel Hill (the University) maintains the Lineberger Comprehensive Cancer Center’s Patient-Reported Outcomes Core system (PRO Core). The University is committed to keeping your personal information confidential, consistent with applicable laws and University policies. You may view the University’s privacy policy at this link:

What information is collected?

PRO Core collects information that is submitted by individuals who are participating in a research study administered by the University or a third party. The specific information that is collected depends on the study protocol. We also collect information about how PRO Core is used, such as IP addresses or phone number, depending on how PRO Core is accessed, along with date and time it was used. All research studies using PRO Core have been reviewed and approved by an Institutional Review Board (IRB).

How will my information be used?

The information you supply to PRO Core will be used in the manner outlined by the research study’s informed consent form. Please refer to the informed consent form that you signed when you enrolled in the study, or you may contact the study coordinator or principal investigator to obtain a copy.

Who can see my information?

PRO Core limits access to your identifiable information to those persons and entities described in the informed consent form for your study. PRO Core site administrators have access to your data only in order to manage, maintain, and update the PRO Core website and database.

How is my information protected?

The University has implemented an Information Security Policy for the protection of sensitive information. This policy and related procedures require, among other things, continuous monitoring of the campus network, use of managed firewalls, and regular vulnerability scanning of servers. All data stored in the PRO Core database are encrypted. Servers are physically located in locked and monitored server rooms on the University’s campus. No matter our efforts, we cannot guarantee complete security. Unauthorized entry or use, hardware or software failure, and other factors, may compromise the security of your personal information.

Use of cookies

When you visit any website, its server may generate a piece of text known as a "cookie" to place on your computer. The cookie allows the server to "remember" specific information about your visit while you are connected.

The cookie makes it easier for you to use the dynamic features of webpages. Cookies from PRO Core webpages only collect information about your browser’s visit to the site; they do not collect personal information about you.

May I opt out of providing information through PRO Core?

You may choose not to participate in any study using the PRO Core system. If you wish to withdraw from a study, please contact the study coordinator or principal investigator listed on your informed consent form.

Policy Changes

This privacy policy is reviewed periodically and will be updated as necessary. This privacy policy is dated February 1, 2018, and will remain in effect until a revised and updated policy is posted.

Contact Information

If you have additional questions about your study participation, contact the study coordinator or principal investigator.